I’m feeling the urge to blog
again but now the surrey 100 is over I don’t have a ‘challenge’ to write about.
In the absence of a sporting challenge I feel strangely
compelled to write about a daily challenge for me. I have to confess I’m a bit
nervous about writing this entry as I’m afraid to say my daily battle is a
mental health problem.
Yup I have just imagined at least half of you have shut
down the computer and run away screaming.
Perhaps that is unfair, but when other people start talking
about their mental health woes I feel like running away – and I’m certified nuts myself. But I guess it is for this reason I kinda want to write this. Mental
health conditions are something that does have a huge stigma to it. It is hard to
understand and it is a lot easier to think of people who suffer from it as
different, weird, a bit broken and possibly best avoided. I think most people who
read this know me, and hopefully like me, so coming from me it might not seem
so alien. If I am open about my problems perhaps I will be doing my little bit
for mental health awareness.
My particular brand of crazy (or at least the one this
blog entry is about) is known as trichotillomania.
‘The specific DSM-5 criteria for trichotillomania
(hair-pulling disorder) are as follows : Recurrent pulling out of one's hair,
resulting in hair loss. Repeated attempts to decrease or stop the hair-pulling
behavior.’
For me the hair pulling is
thankfully mainly focused on my eyelashes but others pull at eyebrows and head
hair. Most start as children, will probably be intermittently bald throughout their
life and never fully recover.
Trichotillomania is fairly
rare and little research has been conducted to discover the cause or create a
working cure. It is almost tempting to think of it as exotic but the reality is
far from glamorous. For the most part it just means I have a stockpile of unused
Christmas mascara and an inability to see in the rain. Turns out eyelashes are
really useful at keeping water out your eyes! In the shower I look like a mole
dancing as I blindly negotiate washing my hair. I cannot swim at all without
googles, even breast-stroke as the water will instantaneously get into my eyes.
So next time you are stuck in the rain waiting for a bus at least you can
marvel at how good you eyelashes are at keeping your eyes dry. It is true; you
don’t know what you’ve got till it’s gone.
My trichotillomania started in
primary school. In fact my trichotillomania was inadvertently caused by the
nutcracker. CURSE YOU NUTCRACKER. My family went to see it when I was a kid. I’m
not much of a ballet fan myself so decided to pass the time playing with the little
binocular things you get at the big theatres. I was blissfully unaware that these
binoculars were a hive of bacteria and I was effectively having unprotected eye
sex with the previous thirty thousand people who had used them since their
last clean. Unaspiringly I got eye aids – otherwise known as conjunctivitis. I
spent the next fortnight with disgustingly gloopy eyes. I distinctly remember having
to pull the puss from my eyelashes in order to open my eyes in the morning as
they had got stuck together. Inevitably some eyelashes were innocent
casualties in the war on eye gloop.
I guess this must have started
off the habit. At first I didn’t think there was anything wrong with it. I remember
talking to a friend about it during art whilst we were drawing self-portraits. I
told her I sometimes pulled my eyelashes out and she said she did too.
Confirmed, it must be OK then. Little did I know that my friend was so insecure
that she would have agreed with whatever I had said. Had I told her I kill
people at the weekend I’m sure she would have said that she too was a serial
killer. Never trust an 8 year old. So anyway my little habit grew stronger but
no one really noticed. Kids do weird disgusting things all the time, it is
impossible to notice them all.
The first memory I have of
compulsive hair pulling was when I was struggling with my long division
homework. Long division just doesn’t make sense. It never has and it never
will. But when your 9 and you have been sat at your desk for an hour trying to
make it make sense and it is getting late and if you don’t make it make sense
soon you won’t have your homework done by tomorrow and your teacher will shout
and you and everyone else in the class will know you haven’t done it and will
think you are lazy or stupid… it gets a bit stressful. When my mum came over to
check how I was doing she found that the centre of my work book was full of
long black eyelashes. Balled patches had appeared on my eyes which were red and
sore from pulling. I distinctly remember her shock ‘What have you done!’ and
the shame that followed. I learnt then that my little habit was a bad, ugly and shameful habit.
In the weeks that followed it
only got worse. The more my family tried to stop me and tell me off for hair
pulling the worse I felt and the worse it got. I was painfully embarrassed by
it. I remember trying to make up lies to cover what I had done – ‘I woke up and
they fell out’. I never have been very good at lying. I remember it hurt, it
really hurt when I pulled out an eyelash, but this just made me want to pull
another one. A bit like poking your tongue into the hole when a tooth is
removed or poking at a bruise after a fall. It didn’t take long before my eyes
were entirely bald.
Over the next few years things
went from bad to worse. I started to badly suffer from anxiety. At first this
just made me a bit withdrawn but eventually I had such bad panic attacks that I
became house bound. I was depressed. I would go days without eating and the
thought of food made me panic. Missing some eyelashes were the least of my
worries. Eventually at fourteen, I was taken to a psychiatrist that took me
seriously. At the time the general consensus seemed to be that children could not
suffer mental health problems so I saw at least three doctors who told my
mother I was just being difficult. It was this psychiatrist who diagnosed me
with trichotillomania amongst other things. The other things took precedence for
treatment as they were stopping me from functioning so we never really
addressed trichotillomania in the sessions. After a course of anti-depressants,
therapy and a change in school and lifestyle (Mr T arrived), I learnt how to manage
my anxiety and eat food again. The anti-depressants also seemed to stop my trichotillomania.
I think I stopped pulling
entirely from the age of 16 until 20 but close friends tell me otherwise.
Apparently I pulled my eyelashes out over my A Levels, and during a break up at
university, but these must have been small blips as I don’t remember getting
balled from them. I wish, I really wish, I knew why I didn’t pull during this
time. I don’t think I was any happier than I am now. In fact I think I am
happier now then I was then. I wasn’t taking any medication; I stopped the
anti-depressants when I was 16. I was a lot drunker, in fact I’m fairly
confident that from 18 to 20 I was almost permanently drunk. Perhaps copious
amounts of vodka cure trichotillomania? I should publish my findings, it would be
the first known cue! Alas copious amounts of vodka do not get you a degree so
in my final year I decided to sober up… for at least half of my waking hours
and get my head down so I passed the degree. And I guess it was here, once more
at my desk desperately trying to understand a problem in front of me – except this
time long division is replaced by some unfathomable cognitive neuroscience
paper with a hangover to boot - that the compulsive hair pulling started again.
My eyelashes have been
weakened from years of pulling. It used to be quite hard to pull out the beautiful
long black eyelashes I had as a child. But as an adult I now have weak brittle
thin eyelashes that fall out as soon as you look at them. In an hour I can pull
out a section as wide as my finger. Plucking them mercilessly one by one until
there is nothing left. It doesn’t really hurt anymore. Just a pleasant tug and
tingle as the hair pops out. When I get compulsive it is a real need. I feel
agitated, my hands almost itch for wanting to pick. My throat feels tight,
constricted by my want to pick. I find it almost impossible to stop my hands
from touching my face. I run my thumb across my eyelid to find a stump. Once I
find one I cannot stop thinking about it. It almost becomes like a splinter in
my eye, I just need to get it out. On bad days my first waking thought it
pulling out my eyelashes and it is constant through the whole day until I go to
sleep. Unless I see Mr T that is. Any time with Mr T is downtime and I have no
desire to pull when I am around him. which is both lovely and strange. When I’m pulling I go into a trance like
state. It is not really relaxing as such, but I feel a calm detachment from the
world. With the stress of my final year it took no time at all for me to go
balled.
And then I had the dilemma about
what to tell my friends. At school I had ridiculously low self-esteem so talking
about my eyelashes was just too painful to imagine. I also almost never went to
school or talked to people so it was surprisingly easy to avoid the subject. My
best friend clearly had trichotillomania as well, evidence by the balled patch
on her head but we never once spoke about it. We just couldn’t, it was too
shameful. In fact we still have never talked about it! Seems like a bit of an opportunity
wasted now because it would have probably been helpful to share our experiences
but hindsight gets you know where.
All that vodka had made me very
talkative at university. I was blessed with many friends and even more acquaintances
(that unfortunately I can never remember due to vodka but I chat to them anyway
because it is too embarrassing to admit I literally cannot remember anything
about them). The eyelash thing is bound to come up.
… but it didn’t. Hurray for
being fair and too lazy to wear makeup on a daily basis. People didn’t notice,
or at least if they did they never said anything. To me, every time I look at a
mirror I see it. Every photo of me I see it. But I guess I’m very aware of the
picking and all of its negative connotations. To an onlooker I probably just
look a bit washed out. Funny thing was I was almost disappointed no one brought it up. I think I was
ready to talk about it now, and almost wanted people to ask. Eventually I just
started telling my friends about it. They were all slightly bemused but very
good about it. The huge burden of shame I used to carry around as a child had
dwindled to mild embarrassment. It is not something I’m ever going to feel
proud about, but I can now tell strangers about it. A wise, and fairly troubled,
person once sung ‘ridicule is nothing to be scared of’. It is amazing how much
courage that brings me on a daily basis.
And so there you have it.
Confessions of a trichotillomaniac. I still pull. I don’t know how to stop. I’ve
had a crack at many interventions: gloves, sellotape on hands, thinking putty,
glasses, goggles, a picking diary, a picking log, cutting my nails painfully
short, growing my nails impractically long, asking colleagues and friends to
shame me, wearing fake eyelashes. Bizarrely when I put the eyelashes on I don’t
feel the need to touch my eyes, but instead I find myself picking the skin off
my arms so I don’t think I’m really making progress. Nothing seems to stop me.
I would love to stop but I’ve almost made peace with myself over it. Who needs
to see in the rain anyway?
For another perspective on trichotillomania
check out Becky’s blog (which may have inspired this blog post) on U Tube:
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